Movement For Mia

Difficult news to tell your 4 year old … telling Mia her hands and feet won’t get better.

Today Pete and I told Mia that the doctors can’t make her hands and feet better. She cried and then asked for the TV to be put on. I think she is using TV as a distraction and coping method. She is very quiet a lot of the time, hardly smiling, not answering many questions and not engaging in much eye contact. This is of course understandable considering the high level of pain medications she is on and being stuck in a hospital room unwell with numerous doctors and nurses prodding her all day long. I hope in time she will become our beautiful happy Mia again. Surgery for her amputations have been tentatively booked for this Friday and then the following Tuesday. She will likely have below elbow and below knee or through knee amputations. My heart breaks so much everyday for her but forward thinking is the only way to cope with this. I’m sure future prosthetics will be amazing and Mia will adapt. We are looking into a fundraising page but it’s not ready as yet. Also, we have enough meals for a week or so at the moment (I’ll let you know when we need more!). Thank you so much to everyone sending their love and support. We feel so blessed to have so many wonderful people helping us through this difficult time. xx

34 Comments   Respond

  1. Amy, it’s so hard reading all your posts and I cannot imagine at all what you and all your family are going through,.I know you and your family and you are all wonderful and beautiful, caring people. You have a strength in you to envy and a heart so strong for your children. I pray for you and little Mia every day. xxxxxxxxxxxxxx

  2. Amy , i am ever so sorry to read this.
    I can not imagine what you must be going through.
    I pray for you and your beautiful Mia .
    Be strong . ❀️
    All the best wishes , thinking of you xxxx

  3. Aaawww Amy, I cannot begin to even understand what you are all through. But what I do know is that you are one of the strongest women I know, and this no doubt be reflected onto Mia,and as she grows she will have strength like no other.
    We will continue to pray for Mia and you all everyday. Love you guys and will always be here for supoort 😘

  4. The Amedees offer anything we can for you. Cleaning, food prep, washing, whatever.

    Call me anytime to talk or if you need something done.

    Also, Mia has been in our morning prayers every day as well. πŸ’ͺ🏻✊🏻

  5. Amy & Pete my heart breaks for you all. Myself and my family send you so much love and for Mia your little darling we will pray for every single day. Sending you all my love xoxo

  6. Amy – sending you prayers and wishes. You are an amazing family unit and whilst I’m in the UK and can’t offer help just remember we are behind you supporting. You’ve come so far already and Mia is still with you xxx πŸ’œπŸ’œπŸ’œ

  7. Miss Mia has had to go through so much it really is so unfair, I can not even begin how hard it was for you guys having to tell her about her hands and feet not getting better. You guys are doing such and amazing job though and I am sure over time your happy girl will return. We will continue to pray, hope and wish for a quick recover from these surgeries and that rehabilitation goes well too. You know we are here if you ever need us for anything. Xxx

  8. Amy Wilkinson and Peter Wilkinson we wish u the very best outcomes for these ops…… when Amelia had her head op at 1yr old we were told don’t expect miracles….but we did…and we have a beautiful daughter.
    I expect Mia will have miricles she never thought possible too and be a beautiful daughter for you both with time to heal as well…
    Pete as a father and a bloke its hard to tell your daughter u can’t fix it for her….but I’m sure you are doing the best you can…keep it up mate as young Mia needs a strong mum and dad as well…..
    its hard for all of us to completely understand yours and young Mia’s pain and uncertainty about the future…. but as has been said before everyone is here for you……even if only for you to ring and yell at us about what a crap deal it is…….we will listen and in a very small and minute way give u some relief……little jon

  9. A fundraising page will be great. I will love to be able to help out in a little way. In the mean time I will continue sending love

    1. We were all set to put one up when we discovered they take 7.5% of every donation and charge us transaction fees! We would also get locked in contractually which could limit future fundraising opportunities. So just making sure we do due diligence xx

  10. I can’t begin to imagine what you all are going through. You been in my thoughts and prayers.
    I will keep an eye out for whatever you do for fundraising.

  11. Think of you every day. You are so right to be so positive. We all feel so lucky this beautiful one is still with us. I know it’s early and brutal days but I can tell you, the most inspirational and beautiful person – inside and out – that I have ever worked with was Aimee Mullins. Out of adversity and an incredible family and supportive friends along with a super brain – this incredible swan blossomed. Please read her inspirational story. Sending you love and hugs always. X

  12. You, Mia and your beautiful family are in our thoughts every day Amy. We send love and strength. You are doing an amazing job Amy, you are a wonderful mother and a beautiful person. Give your gorgeous girl a huge squeeze from us. Much love to you all. ❀️

  13. Sending Mia, you, Pete & your beautiful family all our love & strength every day honey & know that you are in our thoughts πŸ’•

  14. Thinking of you, Mia and your family every day Amy (even in labour yesterday). I’m sure Mia will be her smiling, happy self again with all the love and support around her. xoxo

  15. Heartbreaking to read so can’t even begin to imagine what it’s like to live it. Know that you all are frequently in my thoughts. Wish I could do more

  16. What a heartbreaking conversation to have to have with Mia πŸ˜ͺ You guys are truly incredible and inspirational. None of us could ever understand what you are going through unless we’ve been through it. But we are all here for you. ❀️❀️❀️

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